Lists of HD Resources


Members of the hunt-dis online discussion group are trying to bring together lists of resources on the World Wide Web for Huntington's Disease families. Following are some lists which already exist and some lists which are being compiled.

If you know of any other lists which already exist or if you would like to compile a list, please contact Renette Davis - Email address: rd13@midway.uchicago.edu

If you have a list which is not in machine-readable form, it can be scanned by Peter Boers - Email address: boersp@iserv.net

For information on the hunt-dis online discussion group see Mailing List for Huntington's Disease.


Annotated Bibliography of Books on How to Deal with Life-Threatening Illness

Will be compiled by Mary Price - Email address: mgic@capaccess.org

Will be converted to HTML and maintained on web site by Renette Davis - Email address: rd13@midway.uchicago.edu

Bibliographies of Huntington's Disease, 1990-

On Renette Davis's web site. Includes separate bibliographies for articles, audio-visual materials, books, electronic resources, pamphlets, plays, and theses. There is also one bibliography that lists all kinds of resources. Address: http://www.lib.uchicago.edu/~rd13/hd/bib2.html

Send additions or corrections to Renette at: rd13@midway.uchicago.edu

Bibliography of Fetal Cell Transplantation

On Renette Davis's web site. Address: http://www.lib.uchicago.edu/~rd13/hd/fetal.html

Send additions or corrections to Renette at: rd13@midway.uchicago.edu

Canadian Resources

Will be converted to HTML and maintained on web site by Rob Laycock - Email address: rlaycock@interlog.com

Dentists Who Will Make Home Visits

Will be compiled by Ginny Silver-Koplo - Email address: RedReggi@aol.com

Will be converted to HTML and maintained on web site by Renette Davis - Email address: rd13@midway.uchicago.edu

Fund Raising Ideas for HD Families

Will be converted to HTML and maintained on web site by Steve Brooks - Email address: SJB2@aol.com

HD/Movement Disorders Clinics

On HDSA's web site. Address: http://neuro-www2.mgh.harvard.edu/hdsa/wheretofindhelp.nclk

Send additions or corrections to: curehd@hdsa.ttisms.com

HDSA Chapter Web Pages

On Mike McCarren's Huntington's Disease (HD) Information on the Internet home page http://ivory.lm.com/~mccarren/

Send additions or corrections to mccarren@telerama.lm.com

HDSA Chapters

On HDSA's web site. Address: http://neuro-www2.mgh.harvard.edu/hdsa/wheretofindhelp.nclk

Send additions or corrections to: curehd@hdsa.ttisms.com

Issues of Patient Care

On Rob Laycock's web site. Address: http://www.interlog.com/~rlaycock/care.html

Send additions or corrections to Rob at: rlaycock@interlog.com

Political Lobbying Activities

On Rob Laycock's web site under "Building awareness around the world". Address: http://www.interlog.com/~rlaycock/internat.html

Send additions or corrections to Rob at: rlaycock@interlog.com

Residential Care Facilities

On HDSA's web site. Address: http://neuro-www2.mgh.harvard.edu/hdsa/wheretofindhelp.nclk

Send additions or corrections to: curehd@hdsa.ttisms.com

Resources for Daily Living with Huntington's Disease

On Renette Davis's web site. Address: http://www.lib.uchicago.edu/~rd13/hd/daily.html

Send additions or corrections to Renette at: rd13@midway.uchicago.edu

Summaries of Huntington's Disease Journal Articles

On Rob Laycock's web site. Address: http://www.interlog.com/~rlaycock/summ.html

Send additions or corrections to Rob at: rlaycock@interlog.com

Testing for the Huntington's Gene - Testing Centers

On HDSA's web site. Address: http://neuro-www2.mgh.harvard.edu/hdsa/genetictesting.nclk

Send additions or corrections to: curehd@hdsa.ttisms.com

Tips for Daily Living with Huntington's Disease

On Renette Davis's web site. Address: http://www.lib.uchicago.edu/~rd13/hd/tips.html

Send additions or corrections to Renette at: rd13@midway.uchicago.edu


The URL of this page is http://www.lib.uchicago.edu/~rd13/hd/lists.html

Created and maintained by Renette Davis. Send comments to rd13@midway.uchicago.edu

Last updated: Oct. 4, 1996

Return to: Huntington's Disease Information