Bibliography of Huntington's Disease, 1990-


This document has not been maintained since Jun. 12, 1997. For lists of specific types of resources, see Bibliographies of Huntington's Disease, 1990-

Renette Davis


"10 Facts About Family Caregivers." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/facts.html

17th International Meeting of the World Federation of Neurology Research Group on Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://prospero.fmc.flinders.edu.au/hd_conference.html

"20 Steps to Help Caregivers." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/steps.html

Albin, Roger, "Research Progress Continues on Several Fronts." Available on the Internet at: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

Almqvist, E.; Andrew, S.; Theilmann, J.; Goldberg, P.; Zeisler, J.; Drugge, U.; Grandell, U.; Tapper-Persson, M.; Winblad, B.; Hayden, M.; Anvret, M. "Geographical distribution of haplotypes in Swedish families with Huntington's disease." Hum. Genet. 94: 124-128, 1994.

Altherr, M. R.; Wasmuth, J. J.; Seldin, M. F.; Nadeau, J. H.; Baehr, W.; Pittler, S. J. "Chromosome mapping of the rod photoreceptor cGMP phosphodiesterase beta-subunit gene in mouse and human: tight linkage to the Huntington disease region (4p16.3)." Genomics 12: 750-754, 1992.

Ambrose, C. M.; Duyao, M. P.; Barnes, G.; Bates, G. P.; Lin, C. S.; Srinidhi, J.; Baxendale, S.; Hummerich, H.; Lehrach, H.; Altherr, M.; Wasmuth, J.; Buckler, A.; Church, D.; Housman, D.; Berks, M.; Micklem, G.; Durbin, R.; Dodge, A.; Read, A.; Gusella, J.; MacDonald, M. E. "Structure and expression of the Huntington's disease gene: evidence against simple inactivation due to an expanded CAG repeat." Somat. Cell Molec. Genet. 20: 27-38, 1994.

American Society for Neural Transplantation. Address: http://www.neuraltransplant.org/

Andrew, S. E.; Goldberg, Y. P.; Kremer, B.; Telenius, H.; Theilmann, J.; Adam, S.; Starr, E.; Squitieri, F.; Lin, B.; Kalchman, M. A.; Graham, R. K.; Hayden, M. R. "The relationship between trinucleotide (CAG) repeat length and clinical features of Huntington's disease." Nature Genet. 4: 398-403, 1993.

Andrew, S.E.; Hayden, M.R. "Origins and evolution of Huntington disease chromosomes." Neurodegeneration, 1995 Sep; 4 (3): 239-44

Angier, Natalie. "Team Pinpoints Genetic Cause of Huntington's." The New York Times, March 24, 1993.

Ansari, A.A., Sundstrom, J.B., "Transplantation of fetal tissues." Immunology and Allergy Clinics of North America, 1996, Vol 16, Iss 2, pp 333. Address: A.A. Ansari, Emory Univ, Sch Med, Winship Canc Ctr, Room 4008, 1365B Clifton Rd NE, Atlanta, GA 30322 USA. Abstract available in Current Contents.

Archer, Elton. Red the rose, sharp the thorn. Longview, TX : Hudson Printing & Graphic Design, 1995. 149 p. "Names changed of all people and the small towns".

Aronin, N.; Chase, K.; Young, C.; Sapp, E.; Schwarz, C.; Matta, N.; Kornreich, R.; Landwehrmeyer, B.; Bird, E.; Beal, M. F.; Vonsattel, J.-P.; Smith, T.; Carraway, R.; Boyce, F. M.; Young, A. B.; Penney, J. B.; DiFiglia, M. "CAG expansion affects the expression of mutant huntingtin in Huntington's disease brain." Neuron 15: 1193-1201, 1995.

Ashizawa, T., Jankovic, J., "Cervical dystonia as the initial presentation of Huntington's disease." Movement Disorders, 1996, Vol 11, Iss 4, pp 457-459. Address: T. Ashizawa, Baylor Coll Med, Dept Neurol, Houston, TX 77030 USA.

Ashizawa, Tetsuo, M.D., "Advances in Understanding of the Disease Mechanisms." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp1.html

Ashizawa, Tetsuo, M.D., "New Treatment Strategies." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp8.html

Australian Huntington's Disease Association (Vic) Inc. Mode of access: Internet and World Wide Web. Address: http://www.vicnet.net.au/~ahda/

"Babe's Brain." From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nlpig.htm

Babul, Riyana ; Adam, Shelin ; Kremer, Berry ; Dufrasne, Suzanne ; Wiggins, Sandi ; Huggins, Marlene ; Theilmann, Jane ; Bloch, Maurice ; Hayden, Michael R. : Canadian Collaborative Group on Predictive Testing for Huntington Disease. "Attitudes toward direct predictive testing for the Huntington disease gene: relevance for other adult-onset disorders." JAMA. 1993 Nov 17; 270(19): 2321-2325.

Baetge, E.E. "Neural stem cells for CNS transplantation." Ann N Y Acad Sci, 1993 Sep 24; 695 285-91

Baird, Todd. Oculomotor deficits in diseases of the basal ganglia : Parkinson's and Huntington's diseases. vii, 57 leaves. Prepared for: School of Basic Health Sciences. Thesis (M.S.)--Virginia Commonwealth University, 1992. Bibliography: leaves 46-56.

Ball, David M. ; Harper, Peter S. "Pre-symptomatic testing for late-onset genetic disorders: lessons from Huntington's disease." FASEB (Federation of American Societies for Experimental Biology) Journal. 1992 Jul; 6(10): 2818-2819.

Bamford, K. A.; Caine, E. D.; Kido, D. K.; Cox, C.; Shoulson, I. "A prospective evaluation of cognitive decline in early Huntington's disease: functional and radiographic correlates." Neurology 45: 1867-1873, 1995.

Barinaga, M. "An intriguing new lead on Huntington's disease." Science 271: 1233-1234, 1996. Electronic version available at http://www.interlog.com/~rlaycock/scimar96.htm. Abstract available in Current Contents.

Barnes, G. T.; Duyao, M. P.; Ambrose, C. M.; McNeil, S.; Perischetti, F.; Srinidhi, J.; Gusella, J. F.; MacDonald, M. E. "Mouse Huntington's disease gene homolog (Hdh)." Somat. Cell Molec. Genet. 20: 87-97, 1994.

Bates, G., "Expanded glutamines and neurodegeneration - A gain of insight." Bioessays, 1996, Vol 18, Iss 3, pp 175-178. Address: G. Bates, Guys Hosp, Sch Med, Umds, Div Med & Molec Genet, London SE1 9RT, ENGLAND. Abstract available in Current Contents.

Bavley, Alan. "Abortion opponent hopes fetal tissue transplant will halt the progression of Huntington's disease." Electronic version available at: http://www.kcstar.com/news/stories/fetal7.htm

Baxendale, S.; Abdulla, S.; Elgar, G.; Buck, D.; Berks, M.; Micklem, G.; Durbin, R.; Bates, G.; Brenner, S.; Beck, S.; Lehrach, H. "Comparative sequence analysis of the human and pufferfish Huntington's disease genes." Nature Genet. 10: 67-76, 1995.

Behavioral neurology of movement disorders. New York : Raven Press, 1995. xix, 341 p. Series: Advances in neurology, v. 65. Includes bibliographical references and index.

"Behavioral Problems in Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/behavior.html

Behrens, M.I., Koh, J.Y., Muller, M.C., Choi, D.W. "NADPH diaphorase-containing striatal or cortical neurons are resistant to apoptosis." Neurobiology of Disease, 1996, Vol 3, Iss 1, pp 72-75. Address: Choi DW, Washington Univ, Sch Med, Dept Neurol, 660 S Euclid Ave, St Louis, MO 63110 USA. Abstract available in Current Contents.

Beischlag, T.V., Nam, D., Ulpian, C., Seeman, P., Niznik, H.B. "A polymorphic dinucleotide repeat in the human dopamine D5 receptor gene promoter." Neuroscience Letters, 1996, Vol 205, Iss 3, pp 173-176. Address: Niznik HB, Univ Toronto, Dept Pharmacol, Toronto, ON M5S 1A8, CANADA. Abstract available in Current Contents.

"The Benefits of Nutrition in HD." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/nutrition.html

Binedell, J., Soldan, J.R., Scourfield, J., Harper, P.S. "Huntington's disease predictive testing: The case for an assessment approach to requests from adolescents." Journal of Medical Genetics, 1996, Vol 33, Iss 11, pp 912-918. Address Binedell J, Univ Wales Coll Med, Inst Med Genet, Heath Pk, Cardiff CF4 4XN, S Glam, WALES. Abstract available in Current Contents.

Bird, Thomas D. ; Bennett, Robin L. ; Lipe, Hillary P. ; Wiggins, Sandi ; Hayden, Michael R. "The consequences of testing for Huntington's disease." [Letter and response]. New England Journal of Medicine. 1993 Apr 8; 328(14): 1046.

Bishop, Jerry E., Waldholz, Michael. Genome: The story of the most astonishing scientific adventure of our time--the attempt to map all the genes in the human body. New York : Simon and Schuster, 1990.

Bishop, Kathleen Kirk. "Psychosocial Aspects of Genetic Disorders: Implications for Practice." The Journal of Contemporary Human Services, April 1993.

Blakeslee, Sandra. "Protein culprit acts to cause Huntington's." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/nyt963.htm

Bloch, M.; Hayden, M. R. "Predictive testing for Huntington disease in childhood: challenges and implications." Am. J. Hum. Genet. 46: 1-4, 1990.

Bloch, Maurice ; Adam, Shelin ; Wiggins, Sandy ; Huggins, Marlene ; Hayden, Michael R. "Predictive testing for Huntington disease in Canada: the experience of those receiving an increased risk." American Journal of Medical Genetics. 1992 Feb 15; 42(4): 499-507.

Boer, G.J. "Ethical Guidelines for the Use of Human Embryonic or Fetal Tissue for Experimental and Clinical Neurotransplantation and Research." Available on the Internet at: http://www.bm.lu.se/~nectar/eth.1.html

Bond, C.E., Hodes, M.E., "Direct amplification of the CAG repeat of huntingtin without amplification of CCG." Clinical Chemistry, 1996, Vol 42, Iss 5, pp 773-774. Address: M.E. Hodes, Indiana Univ, Sch Med, Dept Med & Molec Genet, 975 W Walnut St, Indianapolis, IN 46202 USA. Summary available at http://www.interlog.com/~rlaycock/abs_cag.html#BOND

Borlongan, C.V.; Cahill, D.W.; Freeman, T.B.; Sanberg, P.R. "Recent advances in neural transplantation. Relevance to neurodegenerative disorders." J Fla Med Assoc, 1994 Oct; 81 (10): 689-94

Borlongan, C.V.; Koutouzis, T.K.; Freeman, T.B.; Cahill, D.W.; Sanberg, P.R. "Behavioral pathology induced by repeated systemic injections of 3-nitropropionic acid mimics the motoric symptoms of Huntington's disease." Brain Res, 1995 Oct 30; 697 (1-2): 254-7

Borlongan, C.V., Polgar, S., Freeman, T.B., Hauser, R.A., Cahill, D.W., Sanberg, P.R., "Will fetal striatal transplants correct the akinetic end-stage of Huntington's disease?" Neurodegeneration, 1996, Vol 5, Iss 2, pp 189-192. Address: C.V. Borlongan, Univ S Florida, Coll Med, Dept Surg, Div Neurol Surg, 12901 Bruce B Downs Blvd, Tampa, FL 33612 USA.

Bradlee, Monica. "Happy Birthday to Me!" Electronic version at: http://www.lib.uchicago.edu/~rd13/hd/birthday.html

Bradlee, Monica. "One Family's Way." Electronic version at: http://www.lib.uchicago.edu/~rd13/hd/way.html

"Brain Disorder Treatment Hailed." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/LAtimes2.htm

Brandt, J., Bylsma, F.W., Gross, R., Stine, O.C., Ranen, N., Ross, C.A., "Trinucleotide repeat length and clinical progression in Huntington's disease." Neurology, 1996, Vol 46, Iss 2, pp 527-531. Address: J. Brandt, Johns Hopkins Univ Hosp, Dept Psychiat & Behav Sci, Meyer 218, 600 N Wolf St, Baltimore, MD 21287 USA. Abstract available in Current Contents.

Brandt, Jason. "Cognitive investigations in Huntington's disease." In Neuropsychological explorations of memory and cognition : essays in honor of Nelson Butters. New York : Plenum Press, 1994. xvii, 334 p. Series: Critical issues in neuropsychology. Includes bibliographical references and index. ISBN: 0306449838

Brandt, Jason "Ethical considerations in genetic testing: an empirical study of presymptomatic diagnosis of Huntington's disease." Fulford, K.W.M.; Gillett, Grant R.; Soskice, Janet Martin, eds. Medicine and Moral Reasoning. New York, NY: Cambridge University Press; 1994: 41-59.

Brown, Cynthia J. Ethical issues and protocol for presymptomatic testing of Huntington's disease. Norton, Mass. : Wheaton College, 1992. iii, 57 leaves. Thesis -- Departmental honors in Biology. Bibliography: leaves 53-57.

Brundin, P., Fricker, R.A., Nakao, N. "Paucity of P-zones in striatal grafts prohibit commencement of clinical trials in Huntington's disease." Neuroscience, 1996, Vol. 71, no. 3, pp. 895-897

Brundin, Patrik and Klas Wictorin. "Neuronal transplantation in rat models of Parkinson's and Huntington's diseases." In Repairing the damaged nervous system. London : Saunders Scientific Publications/Academic Press, 1993. p. 383-459. Series: Seminars in the neurosciences, v. 5, issue 6. ISSN 1044-5765.

Bruni, Laura. "HD Patients' Symptoms Vary." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/symptoms.html

Bruni, Laura. "Huntington's Family Link Discovered Early." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/link.html

Bruni, Laura. "Living with Uncertainty." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/living.html

Buetow, K. H.; Shiang, R.; Yang, P.; Nakamura, Y.; Lathrop, G. M.; White, R.; Wasmuth, J. J.; Wood, S.; Berdahl, L. D.; Leysens, N. J.; Ritty, T. M.; Wise, M. E.; Murray, J. C. "A detailed multipoint map of human chromosome 4 provides evidence for linkage heterogeneity and position-specific recombination rates." Am. J. Hum. Genet. 48: 911-925, 1991.

Bull, Laura Nanine. Molecular genetic studies of Huntington Disease. xiv, 189 leaves. Thesis (doctoral)--University of California, San Francisco, 1993. Includes bibliographical references.

Burchfield, Maren Manette Nicholas. Erythrocyte membrane transport of choline in relation to Alzheimer's disease and of chloride ion in relation to Huntington's chorea. xi, 156 leaves. Thesis (M.S.)--University of Kentucky, 1991. Includes bibliographical references (leaves 139-154).

Burgess, M.M., Hayden, M.R. "Patients' rights to laboratory data: Trinucleotide repeat length in huntington disease." American Journal of Medical Genetics, 1996, Vol 62, Iss 1, pp 6-9. Address: Burgess MM, Univ British Columbia, Ctr Appl Eth, Chair Bioeth, 6356 Agr Rd, Vancouver, BC V6T 1Z2, CANADA. Abstract available in Current Contents.

Burke, J. R.; Enghild, J. J.; Martin, M. E.; Jou, Y.-S.; Myers, R. M.; Roses, A. D.; Vance, J. M.; Strittmatter, W. J. "Huntingtin and DRPLA proteins selectively interact with the enzyme GAPDH." Nature Med. 2: 347-350, 1996.

Cariello, L., deCristofaro, T., Zanetti, L., Cuomo, T., DiMaio, L., Campanella, G., Rinaldi, S., Zanetti, P., DiLauro, R., Varrone, S. "Transglutaminase activity is related to CAG repeat length in patients with Huntington's disease." Human Genetics, 1996, Vol 98, Iss 6, pp 633-635. Language: English. Address: Cariello L, Stn Zool a Dohrn, Lab Biochim & Biol Mol, Villa Comunale, I-80121 Naples, ITALY. Abstract available in Current Contents.

"Catalog: Publications and Videotapes." (HD resources available from Huntington's Disease Society of America) Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/catalog.nclk

Chapman, Marguerite A. "Canadian experience with predictive testing for Huntington disease: lessons for genetic testing centers and policy makers." [Editorial]. American Journal of Medical Genetics. 1992 Feb 15; 42(4): 491-498.

Chiu, Edmund. Caring for persons with Huntington's Disease. 2nd edition. New York : Huntington's Disease Society of America, 1991.

"Choreographing Mice - A Breakthrough!!" From Hereditary Disease Foundation. Address: http://www.hdfoundation.org/novnews/nlmice.htm

Chung, Anneke S. Prediction of onset of Huntington's disease. ix, [168], 4 leaves. Thesis (Sc. D.)--Johns Hopkins University, 1995. Bibliography: leaves [151-172].

Cicchetti, F., Parent, A. "Striatal interneurons in Huntington's disease: Selective increase in the density of calretinin-immunoreactive medium-sized neurons." Movement Disorders, 1996, Vol 11, Iss 6, pp 619-626. Language: English Address: Parent A, Hop Enfants Jesus, Ctr Rech Neurobiol, 1401 18E Rue, Quebec City, PQ G1J 1Z4, CANADA. Abstract available in Current Contents.

Cimons, Marlene. "It's all in the family." Los Angeles Times Magazine, February 10, 1991. 7 ff.

Claes, S., Legius, E., Dom, R., Cassiman, J.J. "Correlations between triplet repeat expansion and clinical features in Huntington's disease - Reply." Archives of Neurology, 1996, Vol 53, Iss 8, pp 715-715. Document type: Letter. Language: English. Address: Claes S, Univ Hosp Gasthuisberg, Ctr Human Genet, Herest 49, B-3000 Louvain, BELGIUM. Abstract available in Current Contents.

Clinical genetics handbook. 2nd ed. Boston : Blackwell Scientific Publications, 1993. x, 614 p. Includes bibliographical references (p. 567-568) and index.

Clinical Trials Listing Service. Mode of access: Internet and World Wide Web. Address: http://www.centerwatch.com/MAIN.HTM

The Code of codes: Scientific and social issues in the Human Genome Project. Edited by Daniel J. Kevles and Leroy Hood. Boston : Harvard University Press, 1992.

Collins, Colin Conrad. The identification and characterization of genes in a candidate region for the Huntington's disease gene. Ottawa : National Library of Canada = Bibliotheque nationale du Canada, 1994. 2 microfiches. Series: Canadian theses = Theses canadiennes. University Microfilms order no. UMI00487423. Thesis (Ph. D.)--University of British Columbia, 1993. Includes bibliographical references. ISBN: 0315893451

Communication strategies for people with Huntington's Disease. Huntington Society of Canada, 1993. 1 videocassette (20 min.)

Connarty, M.; Dennis, N. R.; Patch, C.; Macpherson, J. N.; Harvey, J. F. "Molecular re-investigation of patients with Huntington's disease in Wessex reveals a family with denatorubral and pallidoluysian atrophy." Hum. Genet. 97: 76-78, 1996.

Cooke, Patrick. "Sentenced to live." Health 7 (July/August 1993) 80 ff.

Current therapy in neurologic disease. 4th ed. St. Louis : B.C. Decker, 1993. xviii, 427 p. Series: Current therapy series. Includes Symptomatic treatments for Huntington's disease. ISBN: 0801677300

"DNA Direct." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/dna_direct.html

Dalby, Shirley. "Behavioral and Sexual Problems in Huntington's Disease." Horizon, No. 64, 1992, Huntington Society of Canada.

"Dancing Cheek-to-Cheek." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/dancingc.htm

"Dancing to a Cure." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/dancingt.htm

Davis, Renette. "Articles on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/articles.html

Davis, Renette. "Audio-visual Materials on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/audio.html

Davis, Renette. "Bibliography of Fetal Cell Transplantation." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/fetal.html

Davis, Renette. "Bibliography of Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/bib.html

Davis, Renette. "Books on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/books.html

Davis, Renette. "Electronic Resources on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/electron.html

Davis, Renette. Huntington's Disease Information. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/

Davis, Renette. Internet Resources for Huntington's Disease Information. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/outside.html

Davis, Renette. "Mailing List for Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/mailing.html

Davis, Renette. "Neurosurgical Horizons in the Treatment of Huntington's Disease: From the Laboratory to the Clinic." Summary of presentation by Dr. Kathleen Shannon and Dr. Jeffrey Kordower. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/horizons.html

Davis, Renette. Review of Mapping Fate by Alice Wexler. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/mapping.html

Davis, Renette. "Pamphlets on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/pams.html

Davis, Renette. "Plays on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/plays.html

Davis, Renette. Review of Red the Rose, Sharp the Thorn by Elton and Lorene Archer. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/rose.html

Davis, Renette. Review of Saint Vitus' Dance by Jill Rubalcaba. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/saint.html

Davis, Renette. "Theses on Huntington's Disease, 1990- " Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/theses.html

Decruyenaere, M., Evers-Kiebooms, G., Boogaerts, A., Cassiman, J.J., Cloostermans, T., Demyttenaere, K., Dom, R., Fryns, J.P., Van den Berghe, H. "Prediction of psychological functioning one year after the predictive test for Huntington's disease and impact of the test result on reproductive decision making." J Med Genet, 1996 Sep; 33 (9): 737-43. Address: Centre for Human Genetics, UZ Gasthuisberg, University of Leuven, Belgium. Abstract available in Medline.

DeGrazia, David. "The ethical justification for minimal paternalism in the use of the predictive test for Huntington's disease." Journal of Clinical Ethics. 1991 Winter; 2(4): 219-228.

DellaPietra, Lynn. Metamemory in Parkinson's Disease. [Philadelphia] : Hahnemann University, [Department of Mental Health Sciences, Clinical Psychology Program]. vii, 111 leaves. Dissertation (Ph. D.)--Hahnemann University, 1995. Bibliography: leaves 91-99. Includes information on Huntington's Disease.

DeRooij, KE., Dorsman, JC., Smoor, MA., DenDunnen, JT., VanOmmen, GJB. "Subcellular localization of the Huntington's disease gene product in cell lines by immunofluorescence and biochemical subcellular fractionation." Human Molecular Genetics, 1996, Vol 5, Iss 8, pp 1093-1099. Address: VanOmmen GJB, Leiden Univ, Mgc Dept Human Genet, NL-2300 RA Leiden, NETHERLANDS. Abstract available in Current Contents.

De Wert, Guido. "Predictive testing for Huntington disease and the right not to know: some ethical reflections." Evers-Kiebooms, Gerry, et al., eds. Psychosocial Aspects of Genetic Counseling: Proceedings of a Conference. New York, NY: Wiley-Liss; 1992: 133-138.

"Disability Issues." From Caring for People with Huntington's Disease. Available on the Internet at: http://www.kumc.edu/hospital/huntingtons/disability.html

Drellishak, Renee. "Genetic Testing." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/testing.html

Dubinsky, Richard [et al.] Caring for People with Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/index.html

Dubinsky, Richard, M.D. "Home Safety in Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/safety.html

Dubinsky, Richard, M.D. "School Report." Kids can ask questions on Huntington's Disease and Dr. Dubinsky answers them. Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/school_report.html

Dugan, L.L., Gabrielsen, J.K., Yu, S.P., Lin, T.S., Choi, D.W. "Buckminsterfullerenol free radical scavengers reduce excitotoxic and apoptotic death of cultured cortical neurons." Neurobiology of Disease, 1996, Vol 3, Iss 2, pp 129-135. Address: Choi DW, Washington Univ, Sch Med, Dept Neurol, 660 S Euclid Ave, St Louis,MO 63110 USA. Abstract available in Current Contents.

Dunn, Sharon. "Survivor's guilt." Poem. Electronic version available at http://www.lib.uchicago.edu/~rd13/hd/guilt.html

Dunnett, S.B.; Svendsen, C.N. "Huntington's disease: animal models and transplantation repair." Curr Opin Neurobiol, 1993 Oct; 3 (5): 790-6

Dutton, Jeannine. "Huntington's Disease." Poem. Available on the Internet at http://www.lib.uchicago.edu/~rd13/hd/disease.html

Duyao, M. P.; Auerbach, A. B.; Ryan, A.; Persichetti, F.; Barnes, G. T.; McNeil, S. M.; Ge, P.; Vonsattel, J.-P.; Gusella, J. F.; Joyner, A. L.; MacDonald, M. E. "Inactivation of the mouse Huntington's disease gene homolog Hdh." Science 269: 407-410, 1995.

Eagle, Kaaren, and Oleg Kopyov. "Early Postoperative Results in Ten Huntington's Disease Patients Following Transplantation of Fetal Striatal Tissue (2/97)." Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/early.html

Elliott, Wendy. Living with Juvenile Huntington's Disease. Huntington Society of Canada, 1993, 67 pages.

Emerich, D.F., Lindner, M.D., Winn, S.R., Chen, E.Y., Frydel, B.R., Kordower, J.H. "Implants of encapsulated human CNTF-producing fibroblasts prevent behavioral deficits and striatal degeneration in a rodent model of Huntington's disease." Journal of Neuroscience, 1996, Vol 16, Iss 16, pp 5168-5181. Address: Emerich DF, Cytotherapeut Inc, 2 Richmond Sq, Providence,RI 02906 USA. Abstract available in Current Contents.

Emerich, Dwaine F., David W. Cahill, Paul R. Sandberg. "Excitotoxic lesions of the neostriatum as an animal model of Huntington's Disease." In Toxin-induced models of neurological disorders. New York : Plenum Press, 1994. 344 p. Includes bibliographical references and index. ISBN: 0306446146

"Encyclopedia Britannica Heralds Discovery of the HD Gene." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/britanni.htm

Facing Huntington's Disease. Mode of access: Internet and World Wide Web. Address: http://neuro-chief-e.mgh.harvard.edu/mcmenemy/facinghd.html

"Fact Sheet: Huntington's Disease." From Family Caregiver Alliance. Address: www.caregiver.org/fs/fs_hunt.html

Farrer, L. A.; Cupples, L. A.; Wiater, P.; Conneally, P. M.; Gusella, J. F.; Myers, R. H. "The normal Huntington disease (HD) allele, or a closely linked gene, influences age at onset of HD." Am. J. Hum. Genet. 53: 125-130, 1993.

Faul, R.L.M. [et al.] "The distibution of GABAA- benzodiazepine receptors in the basal ganglia in Huntington's disease and in the quinolinic acid-lesioned rat." In Chemical signalling in the basal ganglia. Amsterdam ; New York : Elsevier, 1993. xv, 354 p. Series: Progress in brain research ; v. 99. Includes bibliographical references and index. ISBN: 0444815627 (alk. paper)

Feero, W.; Hoffman, E.P. "Huntington's disease. Their loss is our gain?" Curr Biol, 1995 Nov 1; 5 (11): 1229-31

Feigin, A., Kieburtz, K., Como, P., Hickey, C., Claude, K., Abwender, D., Zimmerman, C., Steinberg, K., Shoulson, I., "Assessment of coenzyme Q10 tolerability in Huntington's disease." Movement Disorders, 1996, Vol 11, Iss 3, pp 321-323. Address: A. Feigin, N Shore Univ Hosp, Dept Neurol, 300 Community Dr, Manhasset, NY 11030 USA. Abstract available in Current Contents.

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"Funding Available Through the Hereditary Disease Foundation." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/fundinga.htm

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Greene, Rickey. You Are Not Alone: A Guide to Establishing Huntington's Disease Support Groups. HDSA, New York, 1992, 56 pages.

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Guidelines for Genetic Testing for Huntington's Disease. Summary of Recommendations, HDSA, 1994, 1 page.

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"HD Families Fortunate to Have Nobel Laureate Join Search for the Cure." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/nobellau.htm

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"HDSA's Research Grant and Fellowship Program." Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/grant.nclk

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A Handbook About Care in the Home: Information on Home Care Services. AARP, 1982 (revised 1992) (Request publication #D955) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

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Haverty, Doug. Could I have this dance? Play. c.1991. For copy of script, contact Dorathy Goley, New Play Development, Front Row Center, P.O. Box 1823, Burbank CA 91507-1823. To secure performance rights, contact: Selma Luttinger, The Robert A. Freedman Dramatic Agency, Inc., 1501 Broadway, Suite 2310, New York, NY 10036.

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"Hints for Writing to Your Legislator." Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/hints.html

Hopes & Dreams. Newsletter of the Huntington's Disease Society of America, Illinois Chapter. Electronic version of selections at: http://www.lib.uchicago.edu/~rd13/hd/hopes.html

Horton, T. M.; Graham, B. H.; Corral-Debrinski, M.; Shoffner, J. M.; Kaufman, A. E.; Beal, M. F.; Wallace, D. C. "Marked increase in mitochondrial DNA deletion levels in the cerebral cortex of Huntington's disease patients." Neurology 45: 1879-1883, 1995.

Hoy, Anne. Physiotherapy for Huntington's Disease Patients. 5 pages, 1991. Available from HDSA.

Huggins, M. ; Bloch, M. ; Hayden, M.R. "Predictive testing for Huntington's disease: the ethical dilemmas and lessons for Alzheimer's disease." Berg, Joseph M.; Karlinsky, Harry; Lowy, Frederick H., eds. Alzheimer's Disease Research: Ethical and Legal Issues. Toronto: Carswell; 1991: 189-209.

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"Huntington's Disease Activities of Daily Living." Informant rated instrument designed to follow disease progress. Mode of access: Internet and World Wide Web. Address: http://www.micronet.fr/~mondor/huntadl.htm

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Huntington's Disease Clinic. From Dept. of Neurology, Baylor College of Medicine. Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/hunt1.html

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Huntington's Disease: Facts at a Glance. HDSA, 1994, 2 pages.

Huntington's Disease: Living with Hope. HDSA, Sioux Valley Chapter, 1992. 1 videocassette (34 min.)

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Huntington's Disease Society of America, Greater Los Angeles Chapter. Mode of access: Internet and World Wide Web. Address: http://members.aol.com/hdsala/hdsala.html

Huntington's Disease Society of America, Illinois Chapter. Mode of access: Internet and World Wide Web. Address: http://www.lib.uchicago.edu/~rd13/hd/illinois.html

Huntington's Disease Society of America, Massachusetts Chapter. Mode of access: Internet and World Wide Web. Address: http://neuro-www3.mgh.harvard.edu/hd/hdindex.htm

Huntington's Disease Society of America, Mid-Michigan Chapter. Mode of access: Internet and World Wide Web. Address: http://www.iserv.net/~hdsamich/index.html

Huntington's Disease Society of America, Minnesota Chapter. Mode of access: Internet and World Wide Web. Address: http://www.adverworld.com/ID/0015/2105/

Huntington's Disease Society of America, Northeast Ohio Chapter. Mode of access: Internet and World Wide Web. Address: http://www.lkwdpl.org/hdsahome.htm

Huntington's Disease Society of America, Western PA Chapter. Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/wphdsa.html

"Huntington's Disease Transplantation Project." From MRC Cambridge Centre for Brain Repair. Address: http://www.brc.cam.ac.uk/people/sbd/hdprog.htm

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Illarioshkin, S. N.; Igarashi, S.; Onodera, O.; Markova, E. D.; Nikolskaya, N. N.; Tanaka, H.; Chabrashwili, T. Z.; Insarova, N. G.; Endo, K.; Ivanova-Smolenskaya, I. A.; Tsuji, S. "Trinucleotide repeat length and rate of progression of Huntington's disease." Ann. Neurol. 36: 630-635, 1994.

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Joffe, Leon. "December Evening." Poem. Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/december.html

Joffe, Leon. "Malaysia - October 1996." Poem. Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/malaysia.html

Joffe, Leon. "Spring Fever." Poem. Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/fever.html

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Kalchman, M.A., Graham, R.K., Xia, G., Koide, H.B., Hodgson, J.G., Graham, K.C., Goldberg, Y.P., Gietz, R.D., Pickart, C.M., Hayden, M.R. "Huntingtin is ubiquitinated and interacts with a specific ubiquitin-conjugating enzyme." Journal of Biological Chemistry, 1996, Vol 271, Iss 32, pp 19385-19394. Address: Hayden MR, Univ British Columbia, Dept Med Genet, 416-2125 E Mall, Vancouver, BC V6T 1Z4, CANADA. Abstract available in Current Contents.

Kanazawa, I.; Kondo, I.; Ikeda, J.-E.; Ikeda, T.; Shizu, Y.; Yoshida, M.; Narabayashi, H.; Kuroda, S.; Tsunoda, H.; Mizuta, E.; Okuno, Y.; Sugawara, K.; Murata, M.; Takahashi, M.; Gusella, J. F. "Studies on DNA markers (D4S10 and D4S43/S127) genetically linked to Huntington's disease in Japanese families." Hum. Genet. 85: 257-260, 1990.

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Kieburtz, K., Feigin, A., McDermott, M., Como, P., Abwender, D., Zimmerman, C., Hickey, C., Orme, C., Claude, K., Sotack, J., Greenamyre, J.T., Dunn, C., Shoulson, I., "A controlled trial of remacemide hydrochloride in Huntington's disease." Movement Disorders, 1996, Vol 11, Iss 3, pp 273-277. Address: K. Kieburtz, Univ Rochester, Med Ctr, Dept Neurol, 601 Elmwood Ave, Rochester, NY 14642 USA. Abstract available in Current Contents.

Kieburtz, K., Penney, J.B., Como, P., Ranen, N., Shoulson, I., Feigin, A., Abwender, D., Greenamyre, J.T., Higgins, D., Marshall, F.J., Goldstein, J., Steinberg, K., Shih, C., Richard, I., Hickey, C., Zimmerman, C., Orme, C., Claude, K., Oakes, D., Sax, D.S., Kim, A., Hersch, S., Jones, R., Auchus, A., Olsen, D., BisseyBlack, C., Rubin, A., Schwartz, R., Dubinsky, R., Mallonee, W., Gray, C., Godfrey, N., Suter, G., Shannon, K.M., Stebbins, G.T., Jaglin, J.A., Marder, K., Taylor, S., Louis, E., Moskowitz, C., Thorne, D., Zubin, N., Wexler, N., Swenson, M.R., Paulsen, J., Swerdlow, N., Albin, R., Wernette, C., Walker, F., et al. "Unified Huntington's disease rating scale: Reliability and consistency." Movement Disorders, 1996, Vol 11, Iss 2, pp 136-142. Address: Kieburtz K, Univ Rochester, Med Ctr, Dept Neurol, 601 Elmwood Ave, Box 673, Rochester, NY 14642 USA. Abstract available in Current Contents.

Kieburtz, K., Shannon, K., "HSG Position Statement on Experimental Surgical Treatments in HD." Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/hsg.html

Kim, Anthony. Striatal changes associated with cognitive impairment in Huntington's disease. ix, 76 leaves. Thesis (M.A.)--Boston University, 1994. Includes bibliographical references.

Klasner, Estelle R., M.A., CCC-sp, Reg. OSLA. Managing Swallowing Difficulties Associated with HD. Huntington Society of Canada, 1990, 13 pages. Available from HDSA or the Huntington Society of Canada, 13 Water Street North, Suite 3, P.O. Box 1269, Cambridge, Ontario N1R 7G6. Phone: (519) 622-1002.

Klasner, Estelle R., M.A., CCC-sp, Reg. OSLA. Managing the Communication and Speech Difficulties Associated with Huntington's Disease. Huntington Society of Canada, 1990, 9 pages. Available from HDSA or the Huntington Society of Canada, 13 Water Street North, Suite 3, P.O. Box 1269, Cambridge, Ontario N1R 7G6. Phone: (519) 622-1002.

Kokemor, Rebecca. "Facing the Conspirator Within." Electronic version at: http://ivory.lm.com/~mccarren/n_ca/conspirator.html

Kordower, J.H., Chen, E.Y., Mufson, E.J., Winn, S.R., Emerich, D.F., "Intrastriatal implants of polymer encapsulated cells genetically modified to secrete human nerve growth factor: Trophic effects upon cholinergic and noncholinergic striatal neurons." Neuroscience, 1996, Vol 72, Iss 1, pp 63-77. Address: J.H. Kordower, Rush Presbyterian St Lukes Med Ctr, Dept Neurol Sci, Chicago, IL 60612 USA. Abstract available in Current Contents.

Koutouzis TK., Emerich DF., Borlongan CV., Freeman TB., Cahill DW., Sanberg PR., Department of Surgery, University of South Florida College of Medicine, Tampa 33612. "Cell transplantation for central nervous system disorders." [Review] Critical Reviews in Neurobiology. 8(3):125-62, 1994.

Kovach, Christine and Sandra Stearns. "Understanding Huntington's Disease: An Overview of Symptomology and Nursing Care." Geriatric Nursing, 1993.

Kremer, B.; Goldberg, P.; Andrew, S. E.; Theilmann, J.; Telenius, H.; Zeisler, J.; Squitieri, F.; Lin, B.; Bassett, A.; Almqvist, E.; Bird, T. D.; Hayden, M. R. "A worldwide study of the Huntington's disease mutation: the sensitivity and specificity of measuring CAG repeats." New Eng. J. Med. 330: 1401-1406, 1994.

Kressly, Esther Neufeld. "A Love Story." Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/lovestor.html

Lange, Herwig W. "Neuroprotective treatment in HD." Mode of access: Internet and World Wide Web. Address: http://dem0nmac.mgh.harvard.edu:80/neurowebforum/HuntingtonsDiseaseArticles/
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The language of biotechnology explained (1). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos1.html

The language of biotechnology explained (2). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos2.html

The language of biotechnology explained (3). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos3.html

The language of biotechnology explained (4). Available on the Internet at: http://www.scicomm.org.uk/biosis/glos4.html

The language of biotechnology (in brief). Available on the Internet at: http://www.scicomm.org.uk/biosis/mini-glo.html

Lawson, K., Wiggins, S., Green, T., Adam, S., Bloch, M., Hayden, M.R. "Adverse psychological events occurring in the first year after predictive testing for Huntington's disease." Journal of Medical Genetics, 1996, Vol 33, Iss 10, pp 856-862. Address: Hayden MR, Univ British Columbia, Dept Med Genet, 416-2125 E Mall, Nce Bldg, Vancouver, BC V6T 1Z3, CANADA. Abstract available in Current Contents.

Laycock, Rob. Building awareness around the world. Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/internat.html

Laycock, Rob. "HD societies providing support." Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/5soc.htm

Laycock, Rob. "Hot Topics!" Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/hot.html

Laycock, Rob. Huntington's disease. Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/2nd.html

Laycock, Rob. Issues of patient care. Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/care.html

Laycock, Rob. Summaries of Huntington's disease journal articles. Mode of access: Internet and World Wide Web. Address: http://www.interlog.com/~rlaycock/summ.html

Leal-Pock, Carmen. "Feeding Tube - Additional Information." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/tube2.html

Leal-Pock, Carmen. "My refuge." Electronic version available at http://www.lib.uchicago.edu/~rd13/hd/refuge.html

Leal-Pock, Carmen. "Trusting God." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/trusting.html

Leal-Pock, Carmen. "Why me?" Poem. Electronic version available at http://www.lib.uchicago.edu/~rd13/hd/why.html

Leeflang, E. P.; Zhang, L.; Tavare, S.; Hubert, R.; Srinidhi, J.; MacDonald, M. E.; Myers, R. H.; de Young, M.; Wexler, N. S.; Gusella, J. F.; Arnheim, N. "Single sperm analysis of the trinucleotide repeats in the Huntington's disease gene: quantification of the mutation frequency spectrum." Hum. Molec. Genet. 4: 1519-1526, 1995.

Leonard, Katie P., M.S., "Guidelines for Presymptomatic Huntington's Disease DNA Diagnosis." Mode of access: Internet and World Wide Web. Address: http://www.bcm.tmc.edu/neurol/struct/hunting/huntp5.html

Leung, C. M.; Chan, Y. W.; Chang, C. M.; Yu, Y. L.; Chen, C. N. "Huntington's disease in Chinese: a hypothesis of its origin." J. Neurol. Neurosurg. Psychiat. 55: 681-684, 1992.

Li SH; McInnis MG; Margolis RL; Antonarakis SE; Ross CA, Department of Psychiatry, Johns Hopkins University, School of Medicine, Baltimore, Maryland 21205-2196. "Novel triplet repeat containing genes in human brain: cloning, expression, and length polymorphisms." Genomics, 1993 Jun; 16 (3): 572-9. Abstract available in Medline.

Li, X.-J.; Li, S.-H.; Sharp, A. H.; Nucifora, F. C., Jr.; Schilling, G.; Lanahan, A.; Worley, P.; Snyder, S. H.; Ross, C. A. "A huntingtin-associated protein enriched in brain and implications for pathology." Nature 378: 398-402, 1995.

Lin, B.; Nasir, J.; Kalchman, M. A.; McDonald, H.; Zeisler, J.; Goldberg, Y. P.; Hayden, M. R. "Structural analysis of the 5-prime region of mouse and human Huntington disease genes reveals conservation of putative promoter region and di- and trinucleotide polymorphisms." Genomics 25: 707-715, 1995.

Lindblad, K., Schalling, M., "Clinical implications of unstable DNA repeat sequences." Acta Paediatrica, 1996, Vol 85, Iss 3, pp 265-271. English. Address: M. Schalling, Karolinska Hosp, Dept Molec Med, Neurogenet Unit, L6-01, S-17176 Stockholm, SWEDEN. Abstract available in Current Contents.

Lindvall, O. "Neural transplantation." Cell Transplant, 1995 Jul-Aug; 4 (4): 393-400

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Lists of HD Resources. Compiled by people on the Mailing List for Huntington's Disease. Available at: http://www.lib.uchicago.edu/~rd13/hd/lists.html

Lorincz, Matthew Thomas. Identification and characterization of the human and mouse promoter from a neuronal gene that maps adjacent to the Huntington's disease gene region. vi, 187 leaves. Typescript. Thesis (Ph. D.)--Wayne State University, 1994. Bibliography: leaves 167-184.

Lovestone, S.; Hodgson, S.; Sham, P.; Differ, A.-M.; Levy, R. "Familial psychiatric presentation of Huntington's disease." J. Med. Genet. 33: 128-131, 1996.

MGH Huntington's Disease Unit. (Massachusetts General Hospital) Mode of access: Internet and World Wide Web. Address: http://132.183.145.103/units/huntington.html

MacDonald, M.E., Gusella, J.F. "Huntington's disease: Translating a CAG repeat into a pathogenic mechanism." Current Opinion in Neurobiology, 1996, Vol 6, Iss 5, pp 638-643. Address: MacDonald ME, Massachusetts Gen Hosp East, Mol Neurogenet Unit, Bldg 149, Room 6115, Charlestown, MA 02129 USA. Abstract available in Current Contents.

MacDonald, M. E.; Novelletto, A.; Lin, C.; Tagle, D.; Barnes, G.; Bates, G.; Taylor, S.; Allitto, B.; Altherr, M.; Myers, R.; Lehrach, H.; Collins, F. S.; Wasmuth, J. J.; Frontali, M.; Gusella, J. F. "The Huntington's disease candidate region exhibits many different haplotypes." Nature Genet. 1: 99-103, 1992.

MacMillan, J.C.; Snell, R.G.; Harper, P.S. "Clinical considerations in gene therapy of Huntington's disease." Gene Ther, 1994; 1 Suppl 1 S88

Madrazo I; Cuevas C; Castrejon H; Guizar-Sahagun G; Franco- Bourland RE; Ostrosky-Solis F; Aguilera M; Magallon E. "[The first homotopic fetal homograft of the striatum in the treatment of Huntington's disease]." Gaceta Medica de Mexico, 1993 Mar-Apr, 129(2):109-17. Language: Spanish. Abstract available in Medline.

Madrazo I; Franco-Bourland RE; Castrejon H; Cuevas C; Ostrosky- Solis F. "Fetal striatal homotransplantation for Huntington's disease: first two case reports." Neurological Research, 1995 Aug, 17(4):312-5. Abstract available in Medline.

Mandich, P., DiMaria, E., Bellone, E., Ajmar, F., Abbruzzese, G. "Molecular analysis of the IT15 gene in patients with apparently 'sporadic' Huntington's disease." European Neurology, 1996, Vol 36, Iss 6, pp 348-352. Language: English. Address Mandich P, Univ Genoa, Ist Biol & Genet, Viale Benedetto XV 6, I-16132 Genoa, ITALY. Abstract available in Current Contents.

Mangiarini, L., Sathasivam, K., Seller, M., Cozens, B., Harper, A., Hetherington, C., Lawton, M., Trottier, Y., Lehrach, H., Davies, S.W., Bates, G.P. "Exon 1 of the HD gene with an expanded CAG repeat is sufficient to cause a progressive neurological phenotype in transgenic mice." Cell, 1996, Vol 87, Iss 3, pp 493-506. Address: Mangiarini L, Umds, Guys Hosp, Div Med & Mol Genet, London SE1 9RT, ENGLAND. Abstract available in Current Contents.

Maneuf, Y.P., Crossman, A.R., Brotchie, J.M. "Modulation of GABAergic transmission in the globus pallidus by the synthetic cannabinoid WIN 55,212-2." Synapse, 1996, Vol 22, Iss 4, pp 382-385. Address: Maneuf YP, Univ Manchester, Sch Biol Sci, Div Neurosci, Manchester M13 9PT, Lancs, ENGLAND. Abstract available in Current Contents.

Marez, JoAnne, "Fate Smiled." From the January 26, 1997 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/fate.html

Marez, JoAnne, "Fighting a Family Curse." From the November 13, 1996 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/fighting.html

Marez, JoAnne, "Neurotransplantation Latest Stab at Incurable Brain Disease." From the November 13, 1996 issue of The Sun, published in Bremerton, Washington. Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/neuro.html

Masuda, N.; Goto, J.; Murayama, N.; Watanabe, M.; Kondo, I.; Kanazawa, I. "Analysis of triplet repeats in the huntingtin gene in Japanese families affected with Huntington's disease." J. Med. Genet. 32: 701-705, 1995.

A Matter of Choice: Planning Ahead For Health Care Decisions. AARP, 1992. (Request publication #D12776) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

Mattsson, Bengt ; Almqvist, Elisabeth Winnberg. "Attitudes towards predictive testing in Huntington's disease -- a deep interview study in Sweden." Family Practice. 1991 Mar; 8(1): 23-27.

Maugh, Thomas H., "Brain Disorder Treatment Hailed." From the Los Angeles Times, Thursday, March 28, 1996. Electronic copy available at: http://www.interlog.com/~rlaycock/LAtimes2.htm

McCarren, Mike. Huntington's Disease (HD) Information on the Internet. Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/

McClellan, J.; Newbury, S. "Inexpressible trinucleotides." [letter; comment] Nature, 1996 Feb 1; 379 (6564): 396

McLaughlin, B.A., Spencer, C. Eberwine, J. "CAG trinucleotide RNA repeats interact with RNA-binding proteins." American Journal of Human Genetics, 1996, Vol 59, Iss 3, pp 561-569. Address: Eberwine J, Univ Penn, Sch Med, Dept Pharmacol, 36TH & Hamilton Walk, Philadelphia, PA 19104 USA. Abstract available in Current Contents.

Medicare's Prospective Payment System: Knowing your Rights. AARP, 1995. (Request publication #D12330) Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

MEDIGAP: Medicare Supplement Insurance. AARP, 1994. Free. To order, call 800-424-3410 or write to AARP Fulfillment, 601 "E" Street NW, Washington, DC 20049.

Medina, L., FigueredoCardenas, G., Reiner, A. "Differential abundance of superoxide dismutase in interneurons versus projection neurons and in matrix versus striosome neurons in monkey striatum." Brain Research, 1996, Vol 708, Iss 1-2, pp 59-70. Address: Medina L, Univ Tennessee, Coll Med, Dept Anat & Neurobiol, 875 Monroe Ave, Memphis, TN 38163 USA. Abstract available in Current Contents.

Michie, S., McDonald, V., Bobrow, M., McKeown, C., Marteau, T. "Parents' responses to predictive genetic testing in their children: Report of a single case study." Journal of Medical Genetics, 1996, Vol 33, Iss 4, pp 313-318. Address: Michie S, United Med & Dent Sch, Guys & St Thomas Hosp, Psychol & Genet Res Grp, Guys Campus, London SE1 9RT, ENGLAND. Abstract available in Current Contents.

Miller, Jean. "Feeding Tube." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/tube.html

Miller, Jean. "If I Can't Talk, Am I Still Here?" Poem. Electronic version available at: http://www.lib.uchicago.edu/~rd13/hd/talk.html

Miller, Jean. "A Letter from my Heart." Electronic version available at: http://www.lib.uchicago.edu/~rd13/hd/letter.html

Miller, Jean. "A Prayer." Poem. Electronic version available at: http://www.lib.uchicago.edu/~rd13/hd/prayer.html

Molecular and cell biology of neuropsychiatric diseases. 1st ed. London : Chapman & Hall, 1994. x, 201 p. Series: Molecular and cell biology of human diseases series ; v. 4. Includes bibliographical references and index. ISBN: 0412478005

Morrison, P. J.; Johnston, W. P.; Nevin, N. C. "The epidemiology of Huntington's disease in Northern Ireland." J. Med. Genet. 32: 524-530, 1995.

Moskowitz, Carol, RN. "Beds and Alternatives." Mode of access: Internet and World Wide Web. Address: http://www.kumc.edu/hospital/huntingtons/bedding.html

Mouchiroud, D.; D'Onofrio, G.; Aissani, B.; Macaya, G.; Gautier, C.; Bernardi, G. "The distribution of genes in the human genome." Gene 100: 181-187, 1991.

Movement disorders. Volume 8, video supplement. New York : Raven Press, 1993. 1 videocassette (108 min.)

Movement disorders. Volume 9, issues 4-6, video supplement 2. New York : Raven Press, 1994. 1 videocassette (70 min.)

Movement disorders. Volume 10, issues 1-3, video supplement 1. Philadelphia : Lippincott-Raven Publishers, 1995. 1 videocassette (100 min.)

Moynihan, Maryann. "Nite at the Races Recap." Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/nite.html

Moynihan, Maryann. "Surfing the Internet." Electronic copy available at: http://www.lib.uchicago.edu/~rd13/hd/surfing.html

Muller, U. Graeber, M.B. "Neurogenetic diseases: Molecular diagnosis and therapeutic approaches." Journal of Molecular Medicine - Jmm, 1996, Vol 74, Iss 2, pp 71-84. Language: English Address: Muller U, Univ Giessen, Inst Human Genet, Schlangenzahl 14, D-35392 Giessen, GERMANY. Abstract available in Current Contents.

Murray, Mary. "Nancy Wexler's Test." The New York Times Magazine. Feb. 13, 1994. p. 28-31.

Naimi, S., Jeny, R., Hantraye, P., Peschanski, M., Riche, D. "Ontogeny of human striatal DARPP-32 neurons in fetuses and following xenografting to the adult rat brain." Exp Neurol, 1996 Jan; 137 (1): 15-25

Nakao, N., GrasbonFrodl, E.M., Widner, H., Brundin, P. "DARPP-32-rich zones in grafts of lateral ganglionic eminence govern the extent of functional recovery in skilled paw reaching in an animal model of Huntington's disease." Neuroscience, 1996, Vol 74, Iss 4, pp 959-970 Language: English. Address: Nakao N, Lund Univ, Sect Neuronal Survival, Dept Physiol & Neurosci, Solvegatan 17, S-22362 Lund, SWEDEN. Abstract available in Current Contents.

Nakashima, K., Watanabe, Y., Kusumi, M., Nanba, E., Maeoka, Y., Nakagawa, M., Igo, M., Irie, H., Ishino, H., Fujimoto, A., Goto, J., Takahashi, K., "Epidemiological and genetic studies of Huntington's disease in the San-in area of Japan." Neuroepidemiology, 1996, Vol 15, Iss 3, pp 126-131. English. Address: K. Nakashima, Tottori Univ, Fac Med, Inst Neurol Sci, Div Neurol, 86 Nishimachi, Yonago, Tottori 683, JAPAN. Abstract available in Current Contents.

Nance. M.A., Sanders. G. "Characteristics of individuals with Huntington disease in long-term care." Mov Disord, 1996 Sep; 11 (5): 542-8. Address: Department of Neurology, Hennepin County Medical Center, Minneapolis, Minnesota, USA. Abstract available in Medline.

Nance, M.A., Westphal, B., Nugent, S. "Diagnosis of patients presenting to a Huntington disease (HD) clinic without a family history of HD." Neurology, 1996 Dec; 47 (6): 1578-80. Address: Department of Neurology, Hennepin County Medical Center, Minneapolis, MN 55415, USA. Abstract available in Medline.

Nance, Martha A., "Huntington Disease -- Another Chapter Rewritten." American Journal of Human Genetics, v. 59, no. 1, July 1996, p. 1-6.

Nanny's birthday. New York, N.Y. : Huntington's Disease Society of America, 1995. 1 videocassette (38 min.)

Nasir, J., Goldberg, Y.P., Hayden, M.R. "Huntington disease: new insights into the relationship between CAG expansion and disease." Hum Mol Genet, 1996; 5 Spec No 1431-5. Address: Department of Medical Genetics, University of British Columbia, Vancouver, Canada. Abstract available in Medline.

Nasir, J.; Lin, B.; Bucan, M.; Koizumi, T.; Nadeau, J. H.; Hayden, M. R. "The murine homologues of the Huntington disease gene (Hdh) and the alpha-adducin gene (Add1) map to mouse chromosome 5 within a region of conserved synteny with human chromosome 4p16.3." Genomics 22: 198-201, 1994.

Network of European CNS Transplantation and Restoration (NECTAR). Mode of access: Internet and World Wide Web. Address: http://www.bm.lu.se/~nectar/NECTARINDEX.html

Neurodegenerative diseases. Philadelphia : W.B. Saunders Co., 1994. xviii, 954 p. Includes bibliographical references and index. ISBN: 0721643493

Neurology Web Forum. Mode of access: Internet and World Wide Web. Address: http://dem0nmac.mgh.harvard.edu:80/neurowebforum/neurowebforum.html

Neuroscience-Net. Address: http://www.neuroscience.com

"New California Law Focuses on Huntington's Disease." Mode of access: Internet and World Wide Web. Address: http://ourworld.compuserve.com/homepages/hereditary_disease_foundation/californ.htm

"New HD Protein Found." Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/winter_96/research.html

"New Theory on Cause of Huntington's Disease." Available on the Internet at: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

Newberg, A.B., Alavi, A. "The study of neurological disorders using positron emission tomography and single photon emission computed tomography." Journal of the Neurological Sciences, 1996, Vol 135, Iss 2, pp 91-108. Address: Alavi A, Hosp Univ Penn, Dept Radiol, Div Nucl Med, 117 Donner Bldg, 3400 Spruce St, Philadelphia,PA 19104 USA. Abstract available in Current Contents.

OMIM *143100 Huntington Disease; HD. Mode of access: Internet and World Wide Web. Address: http://www3.ncbi.nlm.nih.gov/htbin-post/Omim/dispmim?143100

"On Huntington's Disease." In Memory and Honor of Eva Engel and June Hill. Poem by Judy. Electronic version available at: http://www.lib.uchicago.edu/~rd13/hd/judy.html

Orr, Dorothy, R.S.W., "Action Plan for Caregivers." Electronic version available at: http://www.interlog.com/~rlaycock/careg.htm

Parker, James Hill. Health care and freedom : an American dilemma. Brooklyn, N.Y. : Long Island University, 1994. xii, 75 p. ISBN: 081919302X (cloth : acid-free paper) 0819193038 (paper : acid- free paper) Personal narrative about nursing home care for Huntington's Disease patient.

Parrish, J. E.; Nelson, D. L. "Methods for finding genes: a major rate-limiting step in positional cloning." Genet. Anal. Tech. Appl. 10: 29-41, 1993.

Paulson, H.L., Fischbeck, K.H. "Trinucleotide repeats in neurogenetic disorders." Annual Review of Neuroscience, 1996, Vol 19, pp 79-107. Address: Paulson HL, Univ Penn, Sch Med, Dept Neurol, 3400 Spruce St, Philadelphia, PA 19104 USA. Abstract available in Current Contents.

Peacock, Inez. "Huntington's Disease: Delivery of Physical Therapy Services in a Group Setting." Proceedings, Book II, World Conference for Physical Therapy, 1991.

Pecheux, C., leGall, A., Kaplan, J.C., Dode, C. "Sequence analysis of the CAG triplet repeats region in the Huntington disease gene (IT15) in several mammalian species." Annales de Genetique, 1996, Vol 39, Iss 2, pp 81-86. English. Address: C. Pecheux, Univ Paris 05, Biochim Genet Lab, Chu Cochin Port Royal, 123 Blvd Port Royal, F-75014 Paris, FRANCE. Abstract available in Current Contents.

PerezNavarro, E., Arenas, E., Reiriz, J., Calvo, N., Alberch, J. "Glial cell line-derived neurotrophic factor protects striatal calbindin-immunoreactive neurons from excitotoxic damage." Neuroscience, 1996, Vol 75, Iss 2, pp 345-352. Language: English. Address: Alberch J, Univ Barcelona, Fdn Clin, Fac Med, Dept Biol Cellular & Anat Patol, Casanova 143, Barcelona 08036, SPAIN. Abstract available in Current Contents.

Persichetti, F., Carlee, L., Faber, P.W., McNeil, S.M., Ambrose, C.M., Srinidhi, J., Anderson, M., Barnes, G.T., Gusella, J.F., MacDonald, M.E., "Differential expression of normal and mutant Huntington's disease gene alleles." Neurobiology of Disease, 1996, Vol 3, Iss 3, pp 183-190. Address: Persichetti F, Massachusetts Gen Hosp, Mol Neurogenet Unit, Charlestown, MA 02129 USA.

Peschanski, M., "News on Huntington's disease." M S - Medecine Sciences, 1996, Vol 12, Iss 4, pp 535-537. French.

Peschanski, M.; Cesaro, P.; Hantraye, P. "Rationale for intrastriatal grafting of striatal neuroblasts in patients with Huntington's disease." Neuroscience, 1995 Sep; 68 (2): 273-85

Peschanski, M., Cesaro, P., Hantraye, P., "What is needed versus what would be interesting to know before undertaking neural transplantation in patients with Huntington's disease." Neuroscience, 1996, Vol 71, Iss 3, pp 899-900.

Peters, Bryon. "Road to a Cure." Electronic version available at: http://www.interlog.com/~rlaycock/bryon.html

Peyser, C. E.; Folstein, M.; Chase, G. A.; Starkstein, S.; Brandt, J.; Cockrell, J. R.; Bylsma, F.; Coyle, J. T.; McHugh, P. R.; Folstein, S. E. "Trial of d-alpha-tocopherol in Huntington's disease." Am. J. Psychiat. 152: 1771-1775, 1995.

Phillips, J.G., Bradshaw, J.L., Chiu, E., Teasdale, N., Iansek, R., Bradshaw, J.A., "Bradykinesia and movement precision in Huntington's disease." Neuropsychologia, 1996, Vol 34, Iss 12, pp 1241-1245. Address: Phillips JG, Monash Univ, Dept Psychol, Clayton, Vic 3168, AUSTRALIA. Abstract available in Current Contents.

Pillon, B., Dubois, B., Agid, Y. "Testing cognition may contribute to the diagnosis of movement disorders." Neurology, 1996, Vol 46, Iss 2, pp 329-334. Language: English. Address: Agid Y, Hop La Pitie Salpetriere, Inserm, U289, 47 Bd Hop, F-75651 Paris 13, FRANCE. Abstract available in Current Contents.

Piolti, R.; Appollonio, I.; Perego, M.; Pozzi, C.; Rovati, L.; Ferrarese, C.; Frattola, L. "Proglumide, a cholecystokinin receptor antagonist, reduces neuroleptic action in Huntington's chorea." Eur Neurol, 1995; 35 (6): 344-8

Polito, Peggy. "Visiting Your HD Person in a Nursing Home." Mode of access: Internet and World Wide Web. Address: http://ivory.lm.com/~mccarren/winter_95/visit.html

Porteral-Cailliau C, Hedreen JC, Price DL, Koliatsos VE. "Evidence for apoptotic cell death in Huntington disease and excitotoxic animal models." J Neurosci, 15:3775-3787, 1995.

Post, Stephen G. "Huntington's Disease: prenatal screening for late onset diseases." Journal of Medical Ethics. 1992 Jun; 18(2): 75-78.

Pratt, Heather. "Living with HD." Available on the Internet at: http://www.lib.uchicago.edu/~rd13/hd/living2.html

"Predictive Testing for HD." Mode of access: Internet and World Wide Web. Address: http://www.circ.uab.edu/sergg/s95/hd_test.htm

Premont, R.T., Macrae, A.D., Stoffel, R.H., Chung, N.J., Pitcher, J.A., Ambrose, C., Inglese, J., MacDonald, M.E., Lefkowitz, R.J., "Characterization of the G protein-coupled receptor kinase GRK4 - Identification of four splice variants." Journal of Biological Chemistry, 1996, Vol 271, Iss 11, pp 6403-6410. Address: Lefkowitz RJ, Duke Univ, Med Ctr, Howard Hughes Med Inst, Dept Med Cardiol, POB 3821, Durham, NC 27710 USA. Abstract available in Current Contents.

Price, Mary. "Going for the Cure." Report of the 11th Annual Convention of the Huntington's Disease Society of America, June 28-30, 1996, Minneapolis, Minnesota. Electronic version available at: http://www.lib.uchicago.edu/~rd13/hd/going.html

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"What's New in HD Research." Mode of access: Internet and World Wide Web. Address: http://neuro-www2.mgh.harvard.edu/hdsa/newresearch.nclk

Whitefield, J.E.; Williams, L.; Snow, K.; Dixon, J.; Winship, I.; Stapleton, P.M.; Faull, R.M.; Love, D.R. "Molecular analysis of the Huntington's disease gene in New Zealand." N Z Med J, 1996 Feb 9; 109 (1015): 27-30

Wiggins, S.; Whyte, P.; Huggins, M.; Adam, S.; Theilmann, J.; Bloch, M.; Sheps, S. B.; Schechter, M. T.; Hayden, M. R. "The psychological consequences of predictive testing for Huntington's disease." New Eng. J. Med. 327: 1401-1405, 1992.

Wilkinson, Lou. "Life is changing." Poem. Electronic version available at http://www.lib.uchicago.edu/~rd13/hd/life.html

Wilkinson, Lou. "Serenity - where are you?" Poem. Electronic version available at http://www.lib.uchicago.edu/~rd13/hd/serenity.html

Williamson, R. "Testing for Huntington's disease: early clinical studies suggest uptake is low." [Editorial]. BMJ (British Medical Journal). 1992 Jun 20; 304(6842): 1585-1586.

Wolff, Gerhard ; Walter, Wolfgang. "Attitudes of at-risk persons for Huntington disease toward predictive genetic testing." Evers-Kiebooms, Gerry, et al., eds. Psychosocial Aspects of Genetic Counseling: Proceedings of a Conference. New York, NY: Wiley-Liss; 1992: 119-126.

Wood, J.D., MacMillan, J.C., Harper, P.S., Lowenstein, P.R., Jones, A.L. "Partial characterisation of murine huntingtin and apparent variations in the subcellular localisation of huntingtin in human, mouse and rat brain." Human Molecular Genetics, 1996, Vol 5, Iss 4, pp 481-487. Address: Jones AL, Univ Wales Coll Med, Inst Med Genet, Heath Pk, Cardiff CF4 4XN, S Glam, WALES. Abstract available in Current Contents.

Xuereb, J.H.; MacMillan, J.C.; Snell, R.; Davies, P.; Harper, P.S. "Neuropathological diagnosis and CAG repeat expansion in Huntington's disease." J Neurol Neurosurg Psychiatry, 1996 Jan; 60 (1): 78-81

Yesley, Michael S. Bibliography: ethical legal & social implications of the Human Genome Project. Washington, D.C. : [Springfield, VA : U.S. Dept. of Energy, Office of Energy Research ; Available from National Technical Information Service], 1993. iii, 265 p. "DOE/ER-0591."

Yorkston, Kathryn M. Management of speech and swallowing in degenerative diseases. Tucson, Ariz. : Communication Skill Builders, 1995. xvi, 253 p. Includes bibliographical references and index.

Zappacosta, B., Monza, D., Meoni, C., Austoni, L., Soliveri, P., Gellera, C., Alberti, R., Mantero, M., Penati, G., Caraceni, T., Girotti, F. "Psychiatric symptoms do not correlate with cognitive decline, motor symptoms, or CAG repeat length in Huntington's disease." Arch Neurol, 1996 Jun; 53 (6): 493-7. Address: Istituto Nazionale Neurologico C. Besta, Milan, Italy. Abstract available in Medline.

Zuhlke, C.; Riess, O.; Bockel, B.; Lange, H.; Thies, U. "Mitotic stability and meiotic variability of the (CAG)n repeat in the Huntington disease gene." Hum. Molec. Genet. 2: 2063-2067, 1993.

Zuo, J.; Robbins, C.; Taillon-Miller, P.; Cox, D. R.; Myers, R. M. "Cloning of the Huntington disease region in yeast artificial chromosomes." Hum. Molec. Genet. 1: 149-159, 1992.

Zuo, Jian. Cloning and characterization of the Huntington disease region on human chromosome 4. xii, 124 leaves. Thesis (doctoral)--University of California, San Francisco, 1993. Includes bibliographical references.


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